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Ring20 Research and Support UK CIO

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. To provide support for individuals, families and healthcare professionals who are affected by, or who come into contact with Ring Chromosome 20 Syndrome or r(20) – a rare epilepsy syndrome – and to continuously foster interest and promote opportunities for research to improve understanding and outcomes for all those impacted. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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