Soft Bones
Description
Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The mission of Soft Bones, Inc. is to provide valuable information, education and support for people living with hypophosphatasia (HPP), their families and caregivers. The Foundation promotes research of this rare bone disease through awareness and fundraising efforts. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.
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