Spinal Leak CSF Foundation

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. We strive to close gaps, raise awareness, educate both medical professionals and laypeople, and to encourage and fund research so that those affected by intracranial hypotension / spinal CSF leak will experience shorter diagnostic delays, receive more timely and appropriate diagnostic testing and treatments, and have better long-term outcomes. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.