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STXBP1 Australia

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. to fund and drive research in Australia and internationally into STXBP1 disorders, to accelerate the discovery of a treatment/cure for STXBP1 disorders and to enable patients of STXBP1 disorders to participate in therapeutic trials to find a treatment/cure for STXBP1 disorders; Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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