Syrinx Awareness & Athlete Coalition

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. To empower individuals directly with resources that enable a better quality of life while navigating syringomyelia & it’s associated conditions. Flagship Program: The “YOU ARE HEARD” grant. A grant program that equips those suffering from Syringomyelia & its associated conditions with resources to increase quality of life. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.