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Tatton Brown Rahman Syndrome Community

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The Tatton Brown Rahman Syndrome Community aims to support all families affected by TBRS and advance research toward interventions. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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