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TBX4Life

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. TBX4Life promotes a cure for the diseases caused by mutations in TBX4 Gene (TBX4 Syndrome). Its mission includes: Advocate for those affected by TBX4 Syndrome; Enable access for patients to all relevant information; Sponsor, host, participate in activities that promote efforts to cure TBX4-associated diseases; Consolidate disease-relevant data from patients to foster research for TBX4 Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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