Team Telomere

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. A Community for Telomere Biology Disorders Our mission is to provide information and support services to families worldwide affected by Dyskeratosis Congenita and Telomere Biology Disorders, to encourage the medical community’s research in finding causes and effective treatments, and to facilitate improved diagnosis by educating medical providers. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.