The British Porphyria Association
Description
Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The BPA is committed to advocating for, supporting and educating porphyria patients, relatives and medical professionals, so as to improve the quality of life for those living with the different types of porphyria. We promote disease awareness and the advancement of research into new therapies. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.
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