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The CASK Gene Foundation

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The CASK Gene Foundation was created to improve the lives of those impacted by CASK gene disorders by acting as a global voluntary health organization, dedicated to: Improve awareness, education, and advocacy relating to this condition, provide assistance to patients and their families, support and engage in research to accelerate the path to better diagnosis, treatment and a cure. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

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Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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