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THE CUREMAPK8IP3 FOUNDATION

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The CureMAPK8IP3 Foundation is a non-profit global community dedicated to improving the lives of patients and families affected by a MAPK8IP3 gene mutation. The Foundation works to raise community awareness, facilitate research, collect and disseminate information and resources, and connect and support those individuals and families affected by MAPK8IP3-Related Neurodevelopmental Disorder. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

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Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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