The DAND Alliance

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The DAND Alliance is committed to advancing awareness, understanding, and treatment of DEAF1-Associated Neurodevelopmental Disorders (DAND): the Vulto-van Silfhout-de Vries Syndrome (VSVS) and NEDHELS Syndrome. Through community engagement, scientific research, and collaborative partnerships, The DAND Alliance aims to improve the quality of life for affected individuals and their families. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.