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The Guthy-Jackson Charitable Foundation

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. GJCF has invested over $80 million in research since 2008 and has played a pivotal role in the approval of the first-ever FDA-approved treatments for NMO, marking significant progress in a field that previously had no approved therapies for over a century. The foundation also prioritizes Patient Advocacy through multiple programs aiming to improve the quality of life for those affected by NMO. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

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Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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