The Jain Foundation
Description
Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The Jain Foundation’s mission is to cure muscular dystrophies caused by dysferlin protein deficiency. These dystrophies are collectively termed dysferlinopathy, but are also referred to as LGMD2B, LGMDR2, or Miyoshi Myopathy 1 (MM1). Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.
Review
Login to Write Your ReviewThere are no reviews yet.