Go Back
Report Abuse

The Jain Foundation

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The Jain Foundation’s mission is to cure muscular dystrophies caused by dysferlin protein deficiency. These dystrophies are collectively termed dysferlinopathy, but are also referred to as LGMD2B, LGMDR2, or Miyoshi Myopathy 1 (MM1). Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

There are no reviews yet.

Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
View Profile