The Joshua Frase Foundation for Congenital Myopathy Research

Research for Myotubular Myopathy and other Congenital Myopathies, educational information, and research support.

Assistance to families with the purchase of needed medical equipment and being a resource for educating families worldwide on the care for these critically ill children as well as providing resources for them.

The Joshua Frase Foundation for Congenital Myopathy Research is a 501(c)(3) nonprofit (EIN 59-7059890) based in Ponte Vedra Beach, FL.