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The RYR-1 Foundation

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The mission of The RYR-1 Foundation is to advance research toward effective treatments or a cure for RYR-1-related diseases by funding research, educating medical professionals, and providing support and advocacy for patients and families. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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