The SPATA Foundation

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The SPATA Foundation’s Mission is to advocate, educate, and raise funds for research towards SPATA5 and SPATA5L1 Related Disorders. Our hope is that our efforts will help us better understand the function of the genes & lead to treatment for disorders related to these genes. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.