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Timothy Syndrome Alliance

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Our mission is to improve the diagnosis, treatment and care of individuals worldwide with CACNA1C related disorders including Timothy Syndrome and LongQT8, and to support the families and carers of those diagnosed. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

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Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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