Turkish Association of the fight against PNH and aHUS Diseases
Description
Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Our patient organization is called Turkish Assocaition of the fight against PNH and aHUS Diseases. We try to help to our patients in our community ,enlight their long journey, make them feeling not alone. We give them support and guidance. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.
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