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Uriel E. Owens Sickle Cell Disease Association of the Midwest

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The mission of the Uriel E. Owens Sickle Cell Disease Association of the Midwest is to provide information and awareness about Sickle Cell Disease, to advocate for the needs of persons with Sickle Cell, and support research to find a cure. Besides education and awareness, the Association provides emergency financial assistance, referral services, state and national advocacy, and educational scholarships for sickle cell patients. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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