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US Hereditary Angioedema Association

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering access to suitable treatment, and fostering ground-breaking research that includes searching for a cure. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

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Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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