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Usher 1F Collaborative

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Usher syndrome is the leading cause of inherited deaf-blindness. Mission: The purpose of Usher 1F Collaborative is to fund medical research to find an effective treatment to save or restore the vision of those with Usher Syndrome type 1F. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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