Usher Syndrome Ireland

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Usher Syndrome Ireland’s mission, as per its governing constitution, is to promote and protect the health of those suffering from genetically inherited Usher Syndrome, through the provision of information for people affected by this condition, and by funding scientific research into the causes, treatment and cure of all types of the condition and publishing the useful results. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.