Wishes for Elliott

We work collaboratively to accelerate the pace of science on scn8a and related disorders in order to bring hope and improved outcomes for all those living with rare epilepsies and their families.

Education: we work to improve the understanding of scn8a by ensuring that stakeholders foster relationships break Down barriers and collaborate to find treatments and improve the quality of life for all. Education is a two way street. We learn from families and we provide opportunities for families to engage with researchers pharma clinicians regulators and beyond. We break Down silos that stall progress and ensure all are working with the utmost speed to reach our goal a cure for our children.

Advocacy : our efforts, spanning both the broad range of developmental and epileptic encephalopathies (DEES) and scn8a, include diverse advocacy efforts to both legislative and administrative policymakers. Our legislative advocacy includes multiple efforts addressing pending legislative actions and appropriations that affect supported research and support for families I.e., proposed Medicaid changes as well as advocating for additional federal funding for translational epilepsy research.

Wishes for Elliott is a 501(c)(3) nonprofit (EIN 47-1822559) based in Washington, DC.