Ybrp

YBRP INC. is a parents of patients led non-profit organization. Our primary goals are: 1) To fund research to identify, understand, treat and ultimately cure those impacted by HNRNPH2 mutations. 2) To fund initatives to raise awareness and identify more individuals with HNRNPH2 mutations. 3) To connect families impacted by HNRNPH2 in order to contribute to the understanding of the disorder.

Family Meeting US-annual conference & family meeting joining Scientists, Researchers, and Clinicians with Families. 5 new families were reached. Benefiting treatments and research assets.

Family Meeting Europe-annual conference & family meeting joining Scientists, Researchers, and Clinicians with Families. 22 new families were reached. Benefiting treatments and research assets.

Ybrp is a 501(c)(3) nonprofit (EIN 83-4191901) based in New Rochelle, NY.