Yellow for Yiannis IRF2BPL Foundation

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Yellow for Yiannis IRF2BPL foundation was created with two very big missions. Funding and developing a viable treatment for IRF2BPL and helping families obtain the treatment that we are hoping will empower our children. IRF2BPL is a fatal progressive neuro-degenerative disorder.. with no known treatments/cures… YET.. We exist to be a resource for IRF2BPL and Rare as a whole!! Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.