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ZTTK SON-Shine Foundation

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. To aid, connect, support, advocate, raise awareness, promote research and education about ZTTK Syndrome for patients and families Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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