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Aislinn’s Wish Foundation

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Aislinn’s Wish Foundation is a non-profit organization created to improve the lives of children diagnosed with the rare, genetic, terminal disorder known as Sanfilippo Syndrome. The Foundation strives to promote awareness and contribute to scientific research, with the goal of finding a cure for Sanfilippo Syndrome. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 4 months ago
  • matt.toresco@archo.io
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