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Arginase 1 Deficiency Foundation

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Our community is made up of parents, family members, friends and caregivers who have also faced this diagnosis and understand the range of emotions and questions you may have. We are here to provide information on ARG1-D, resources to guide you on this journey and perhaps most importantly, we are here to let you know that you are not alone. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 4 months ago
  • matt.toresco@archo.io
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