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Cardio Facio Cutaneous Syndrome International

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. To improve the quality of life for individuals with CFC Syndrome and their families through family support, research, and education. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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