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CDKL5 Research Collaborative

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. to fund clinical and therapeutic research and raise awareness of CDKL5 disorder, while developing treatments and standards of care to improve the lives of those living with CDKL5. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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