INSTITUTO DEAF1

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Promote scientific researching, managing, doing or allocating funds to find a cure, treatment or important health information to diminish the consequences, comorbidities and impacts on the health and well-being of people with DEAF1 variants described as VULTO-VAN SILFHOUT DE-VRIES SYNDROM (VSVS) or NEDHELS. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.